In the Beginning

In order to understand the nature and flowing references throughout my blog, I recommend reading my initial post The End of the Beginning first.
Showing posts with label schizo-affective. Show all posts
Showing posts with label schizo-affective. Show all posts

7.21.2013

Growing up with Schizophrenic Mother


I pilfered this post title from this book I read last year. It was helpful and painfully overwhelming at the same time. I'm not sure why I waited so long to read something like this, as I had been on the path of healing from this part of my childhood experience for 15 years. When the student is ready the teacher appears, and you can't make yourself arbitrarily ready for something until you are. At the close of last year, I was finally ready.

I have always thought that my childhood was mostly normal up until age 11 when my mother's illness skyrocketed and the proverbial shit hit the fan. (I have since surfaced abuse memories - not related to my mother - beginning at age 5. What a mind fuck to realize that my previously thought normalcy was anything but.) In my child brain, it seemed to me that one day she was fine and then poof! she was sick. In reality, that is not at all how schizophrenia happens.

I now realize that there were traces of my mother's sickness in earlier years but these are nearly unrecognizable to a small child: acute obsessive behaviors, periods of being "checked out" or extremely withdrawn. Suffice to say, I spent a lot of time alone growing up though this is somewhat comforting for an introvert. We lived on a farm and I reveled in the hours I logged in the barn, with our animals, or walking out in nature. Among the trees, flowers, and birds - that is where I feel most at home.

It wasn't until age 11 that there were clear and present signs of danger with my mother. She went from a high functioning corporate working woman to a mental and emotional wreck in a matter of months. Though schizophrenia is typically diagnosed in early 20's, there are cases considered late-onset where the prevalence of symptoms do not show up until around age 40. My mother was 37.

She left us, my dad and I. My older brother had just graduated from high school and moved away. This fact is an anchor in my memory timeline; the details of this period in my childhood are so hazy that I have to rely on things that I know when and where they happened, such as my brother's departure. Shortly thereafter she moved into an apartment not far away from our house. I had a bedroom there and could walk back and forth, still able to ride a bus to and from the same school. I was in 7th grade.

I distinctly remember my mother asking me to include her in the things I did with my friends, which as an early adolescent is about as pleasant as a root canal. Over the next few months these requests grew from "be my friend/partner" to "take care of me" and then landed squarely on "save me." This did incalculable damage to Little Me who needed my mother to do these very things as a part of my normal growth and development. In reading the aforementioned book on this subject, I discovered that this is typical and equally damaging for others who shared my circumstance.

This pattern of role reversal cemented itself and continues to this very day. From that point forward I did not have a normal or healthy childhood. A significant part of my healing journey has been to unravel this daughter-has-become-mother pattern and set healthy boundaries with her which has only been complicated by the experience of sexual abuse. It has not been easy to say the least, since ASCAs have virtually no sense of boundary. Having your personal and physical boundaries repeatedly violated makes it virtually impossible to understand where you begin and someone else ends.

Here is where the fog rolls in. At some point (weeks? months?) after living in her apartment my mother attempted suicide via overdose. I was there. I have some dreamlike memories of her pushing me out the door with jacket in hand (perhaps this means it was fall?) saying things like "never forget that I loved you." I did and did not understand what was happening. I walked to my father's house in a semi-lucid state and told him what was going on. We went to find her and took her to the hospital where they proceeded to pump her stomach and make her drink a charcoal solution to absorb remaining toxins. (We will revisit my horrific images of the apartment and the hospital in a subsequent post called Intro to EMDR.)

I have replayed this scene in my head a thousand times. I have carried immense guilt throughout my life because I did not stop her, did not protect her, could not save her from herself. There were more suicide attempts after this one, at least 2 of which I am aware but was either not directly involved or have repressed the memories. I have battled feeling equally responsible and guilty for all of these suicide attempts for more than two decades.

My mother lost her job and the apartment. She moved around taking up temporary residence with varying friends and family members. I have very little recollection of these times and places. I know I visited and even stayed with her but am unsure how I got there, if I lived there, how long I visited, or what we did, let alone anything else going on in my life at the time. School? I know I went. Friends? I'm sure I had them. Flash photograph memories, that's all I have.

After some period of time my mother went to live with her parents. I think this was after the scene of abandonment which went something like this: I was at school - I think I was 14 at the time - and leaving on the bus for an away-game as the baseball team's statistician. Mother pulled me out of the queue and forced me into her car; she had experienced some sort of 'premonition' and decided that travel on that bus was unsafe. This was not atypical as her behavior had become quite erratic. We got in the car and she drove me to dad's driveway. I thought I was just supposed to get out and go inside, now protected from whatever boogity she thought was going to get me on the bus. Instead, she proceeded to tell me that she had never loved me, that she had grown tired of being my mother, and that she wished to have no further contact with me. Ever.

I got out of the car and stood in the driveway for a long time in what I now realize was a fully dissociated state. I believe I remained that way for a great many months.

I went to live with my father permanently at this time. He had remarried and now I had a little brother. Indeed my mother made good on her promise to cut me out of her life until she showed up with no warning in my father's new place of residence nearly 2 years later (we had moved in the spring of 1990, another anchor in my memory timeline). I was 16. There is no word in the English language that can adequately describe the internal tsunami I experienced at that moment. Desperate to see and be loved by her, and equally desperate to stave her off. I have no memory of the actual interface; I only remember the emotional tumult at the time I was informed she had arrived.

More haze. I believe we established some amount of relationship and I visited her at the grandparents' house a number of occasions through high school and while I attended college. My memory begins to take more form during my senior year and I have what I would consider normal recollection during my college years. (I majored in Psychology, no great surprise there.) During this time, my mother existed in a near catatonic state. She exhibited both positive schizophrenic symptoms (episodes of marked psychoses such as hallucinations and delusions) and negative symptoms such as flat affect and asocial behavior.

A few stories that will give you a flavor for what is was like to be around her:

    • After watching television or movies with her, she would proceed to explain how each character was representative of someone or something in her life; in her mind it was as if her life was being played out on screen. This is known as delusions of reference.
    • She would save dollar bills, usually singles, by the droves. She spent hours upon hours dissecting what she thought were hidden codes in the serial numbers, messages being sent to her directly from God. These were delusions of grandeur in that she believed she had a direct line of communication with The Almighty.
    • She would sometimes watch the television when it was turned off, laughing or crying. She also reported, though not often and not publicly, that she heard voices. Both are forms of hallucination.
    • She often talked about how my grandparents were holding her prisoner and that they were in cahoots with her primary care physician to keep her sick. These were delusions of paranoia.

My mother refused psychiatric help. She would only relent to seeing her primary care physician, a man she had known and trusted for a great number of years. PCPs receive little specialized training in mental health; consequently he played psychopharmacological roulette with my mother for nearly 10 years before landing on the right medication. It was Zyprexa.

The radical transformation in my mother's demeanor upon the introduction of Zyprexa was nothing short of miraculous. Though I chide his gambling approach to my mother's mental health, I am eternally grateful to Dr. M for pursuing chemical treatment until he found the right combination. She was no longer asocial, could hold conversation with people she had just met, and would even laugh out loud - in appropriate settings! This change in persona revolutionized my life; I felt an enormous weight lifted from me. I had spent a significant portion of my waking hours worrying and agonizing over her state of being. I didn't have to do that anymore. However, I see now that the boundary-less care taking merely shape shifted into something equally unhealthy for me.

I became obsessed with giving my mother a "normal life." Having just recently finished graduate school, I now had stability and money for the first time. I spent a lot of it taking her on vacations, trying to give her experiences that would make her see how great life could be. Aka, I wanted her to want to live. It was very akin to having a child. Funny, I even took her to DisneyWorld. You would think I could've recognized the obvious parallel there, but it would take me years to understand what I was doing and the relative unhealth of it for me.

Throughout my adult years, I have felt enormous responsibility for keeping my mother alive and infusing life into her. I took financial and legal responsibility for my mother at age 26 when I purchased a house for her and moved her to the area where I lived. For a number of years I have called her daily, sometimes more than once per day. If I went too long without talking to her, I would sometimes reel into a panic that I might find her dead. I have never made a decision in my life where I did not first consider how it would affect her. I venture to say that even some of my decision to get married (because it wasn't what I wanted nor to whom I wanted) was an effort to provide her a "stable home" - again, just like one would do for a child.

The damage that I have done to myself, to my life on these accounts is immeasurable. I have lost many years, hopes, dreams, and aspects of self because I mistakenly thought that my mother's story was my story. (I elaborate on the irony and subconscious functionality of using the masking event of my sick mother to hide the true root cause of my trauma in a later post called Goodbye Panda.) Only in this past year during the unfolding of my actual story have I been able to separate the two. It has been incredibly liberating and inordinately painful. Like most things in life, the balance of these two extremes creates the totality of full catastrophe living. And what a catastrophe this past year has been.








Psychology 101

You've now heard a good bit about my struggle with dissociation. You've also been introduced to my schizophrenic mother. Pop culture often regards Schizophrenia synonymous with Multiple Personality Disorder (the official name for which is Dissociative Identity Disorder [DID]). There's that word again: dissociation. Semantics can make these 3 ailments seem similar, yet they are so very different. And so I thought it might be helpful to talk about all of these disorders in a concise, easy to distinguish way.

The DSM-IV (Diagnostic and Statistical Manual for Mental Disorders, 4th edition) is what mental health professionals use to formulate official diagnoses. Mental health problems are not as tangible or measurable as physical ailments, so the manual is used to assess tendencies, frequencies, and duration in order to discern likelihood of the presence of a mental illness. It is not cut and dry, but there are very specific indicators for each disorder.  If interested, one can learn all about how the DSM-IV is laid out and referenced from The Virtual Psychology Classroom.

It is important to understand that disorders are divided into classes:

    • Anxiety disorders such as post-traumatic stress disorder (PTSD), obsessive-compulsive disorder (OCD), and phobias
    • Mood disorders such as depression and bipolar
    • Psychotic disorders such as schizophrenia
    • Eating disorders - anorexia and bulimia
    • Personality disorders such as antisocial and paranoid 
    • Tic disorders such as Tourette's syndrome
    • Dissociative disorders such as dissociative amnesia, dissociative fugue, depersonalization, and DID

Note that Dissociative Identity Disorder and Schizophrenia are not even in the same classification. I am not sure how popular culture came to confuse these two mental health problems but they are not even remotely related. This has been a pet peeve of mine for many years, particularly when I talk about my mother and people ask me which personality is the "worst" one. Alternate identities has nothing to do with schizophrenia. The best distinction I have read is that "People with schizophrenia do not have split personalities. Rather, they are 'split off' from reality."

I elaborate further about my experience with this disorder in a post called Growing up with Schizophrenic Mother.

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I would like to take this opportunity to segregate my dissociate tendencies from DID. I do not profess to have DID, nor have I ever considered this a possibility. I do not have alternate identities, hear voices, or have long bouts (e.g., years) of my life for which I cannot account; nor do I have any tendencies to disappear and take on a new identity (which also rules out dissociative fugue).  

I do, however, have some amount of dissociative amnesia. There is a heavy fog around my memory from ages 11-15 that has taken years of therapy to map out. During this time my mother's illness skyrocketed, she attempted suicide multiple times, my parents divorced, my dad remarried, I moved around to several residences with my mother, I was sexually abused, my mother abandoned me for several years, I went to live permanently with my father who swiftly moved us away, and I switched schools 3 times. Of these things I am sure and I'm relatively aware of the order, I just have little to no actual memories of these events. What I have is akin to flash-photograph type recollection of certain places, times, and occurrences but nothing I would call coherent. It's a lot like stringing pearls.

I will blog more about many of these pearls, but I thought it important to set the stage. Often times we only recognize what something is in the stark contrast of what it is not. In fact a good part of my journey has been to understand and appreciate what I am not, but to learn from and sometimes be inspired by these things in order to progress along my own path. 

I have been drawn to themes of dissociation and DID for many years, long before I recognized the personal relevance. I like to think this was Real Me's way of reaching out and crying for recognition and healing. My favorite book on the topic is When Rabbit Howls and I watched every episode of United States of Tara with baited breath.

Now that I have full knowing and language for the issues I face, I have been doing a great deal of pointed research on the topic. One of the most inspiring blogs for me has been by a creative and articulate DID named Grace. Though I do not suffer from DID, we use some of the same healing modalities. If you are curious about DID please visit her blog KnowDissociation.





7.19.2013

The Breakthrough Crisis

Hypervigiliance is an enhanced state of sensory sensitivity accompanied by an exaggerated intensity of behaviors whose purpose is to detect threats. It is also accompanied by a state of increased anxiety which can cause extreme exhaustion. Other symptoms include:
    • abnormally increased arousal
    • high responsiveness to stimuli
    • constant scan of the environment
    • high alert to be certain danger is not near
    • obsessive behavior patterns
    • difficulty with social interaction and relationships
    • losing connections with family and friends
    • difficulty getting to sleep or staying asleep
Hypervigiliance is a symptom of post-traumatic stress disorder.

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This is precisely what happened to me in August 2012 in response to a minor change in my life: my mother came to live with me. She had come to visit me on many previous occasions, so I had no reason to believe this would be a negative experience. In fact, I was looking forward to it. The arrangement was to be temporary (less than 3 months) while she transitioned from one home to another. However, it only lasted 4 weeks. In a state of utter despair and desperate for relief, I moved her to a residential hotel for the remainder of her transition.

At the time I was mistakenly blaming my suffering on her snoring and late-night meowing cat. There is also the part about her being schizophrenic, or more accurately having schizo-affective disorder (because her bouts of delusions and catatonia are sprinkled with a fair dose of severe depression including multiple suicide attempts), rendering her disabled and now under the financial and legal care of yours truly, but that is another post for another day. Even so, a part of me knew there was something more going on with my state of unrest. Much more.

This was my Breakthrough Crisis. The ASCA Survivor to Thriver Manual describes this experience as a time when "something happens to release a flood of old memories, feelings and even physical sensations of the abuse. Although this crisis does not necessarily destabilize all survivors, for many it can be the most harrowing time in recovery, and it often provides the impetus to finally face the past."

The Manual goes on to say this experience, albeit terrifying, is quite normal for survivors of abuse. It can leave you feeling liked a frightened child without any adult control over your life. Feelings of powerlessness, disorganization and agonizing fear hijack your mind-body. In fact you may very well think you are going crazy. I certainly did. 

I experienced prolonged periods of suicidal ideation. I was barely able to function at work especially while juggling a busy travel schedule. I immediately sought therapy and, for the first time in my life, made a few failed attempts to cycle on and off different anti-depressants. The side effects were debilitating for me, as I have a job which requires me to be en pointe in social settings. I opted to take the non-medical route, upon which I elaborate in a later post entitled Unstuck in Tibet.

You may be wondering, as did I, why a long visit with my mother brought about my breakthrough crisis. It would be many months later before I would discover that the major abusing episode(s) occurred during the last time I shared residence with my mother 25 years prior. While living with her again as an adult, I was simply re-experiencing the panicked state of hypervigilance I must have donned during my childhood. Always looking over my shoulder, expecting someone to attack me like a creature in the night. Because he did.

It's enough to say for now that I did survive both the original hypervigilance and its reliving. It felt like hell, but it was the beginning of a wonderful pathway to eventual freedom. During this time it is noteworthy that I found great comfort in this blogspot from Hyperbole and a Half. It was nearly the only thing that made me smile for nigh 2 months. Thank you Allie!!

An image from Hyperbole that epitomizes precisely how I felt during the Breakthrough: